Patient Information
On this page, you will find information for patients that are interested in finding out more about what their Doctor is asking them to provide their responses for.
Significance of data collection
Despite advances in the treatment of upper limb musculoskeletal conditions, there are gaps and controversies in the knowledge regarding specific patient, treatment and management factors that affect short- and long-term patient outcomes. In particular, it is unknown whether surgical management is superior to nonoperative management in the treatment of shoulder pathologies, and the relationship between modifiable and non-modifiable factors with respect to treatment success is not well documented in the literature.
As such, OrthoCompass has been designed with an evidence-based approach to monitor and analyse patient outcomes associated with upper limb pathology. With your consent, this data is then deidentified and shared with the PROPELLER Registry. The registry aims to help inform and improve future surgical and patient management practices, and to reduce the occurrence of adverse events or complications.
Frequently asked questions
What information does the OrthoCompass collect?
Information required for OrthoCompass includes demographic information, relevant medical history, and results of questionnaires that are used to evaluate joint function and general health.
How confidential is the information?
Information collected is only used for the purpose of allowing your clinician to track your progress through their treatment and is not disclosed elsewhere except as required by law. If you grant consent when provided with your first patient-reported outcome questionnaire, your de-identified data will also be shared with the PROPELLER-ORTHO Registry. When data is analysed as part of the Registry dataset it is to describe the effect of treatments, where group analyses are performed and individual patients are not and can not be identified. More information can be found on the PROPELLER-ORTHO Registry website.
What are the benefits of taking part in OrthoCompass and the PROPELLER-ORTHO Registry?
For individual patients, there is the possibility of using the data within OrthoCompass to compare your results to others that have presented with a similar problem and have received similar treatment. This may help clinicians monitor progression and make adjustments to treatment in consultation with their patients. In addition, ongoing research into orthopaedic treatments through OrthoCompass and the PROPELLER-ORTHO Registry helps to maximise quality of care given to patients with similar problems in the future.